by Anne Fricke
To the Parents of Children with Special Needs in a Pandemic
This new normal?
We got this
like any new normal on this journey
like giving my daughter a shot every night,
piercing her flesh with the thin metal signifier
of medical progress since she was 11 months
old and couldn’t even sit
like explaining to her, once again, that her shots
help her grow strong
like repeating her words as an unobtrusive
aside, an experienced translator to the in-articulation
that sometimes spills from her lips
like waking in the night with the random but
heart breaking realization that she can never go
to ‘typical’ summer camp unattended and
devising ways to secretly imbed a one-on-one
aid for when she begs to go because her sister,
who has the luxury of rolling up her sleeping bag and
stealing away for a week with no concerns
for prescriptions, diet, injury, or behavior modifications,
has already left
like slowing my pace any time we walk together
like asking for updated prescriptions of albuterol
when a virus attacks the community and getting
fresh batteries for her oximeter, along with a dozen
kid-friendly herbal remedies, because I’ve seen
her struggle with coughs before and know
how to prepare,
like speech therapy on zoom
These times are calling for us to adapt,
like we know how to do,
to dip brushes into paints we’ve never seen before,
spread them across a canvas that was chosen for us,
sometimes we get bogged down by the minute details,
anxiety-ridden and grief-stricken over the tiny flecks
of paint that have scattered outside our design,
like teaching math to a child who can’t grasp
the concept of numbers,
or patiently answering the same questions because
the perseveration is a sign of anxiety and
so are the tears she sheds onto her pillow at night and
the lack of social continuity has caused her to feel hungrier than
normal and we know it will always be this way for her
and we can lament over the spilled droplets of paint,
or we can paint petals around them and name them
flowers and then step back and see the painting for
the masterpiece that it is and
we
can
adapt,
again,
as we are asked to do on this journey,
and we can remember that yes,
it will change again, this normal won’t be anymore,
and we will thank its passing and fret the new,
or vice versa, but we will adapt,
this new normal, whatever it is,
we got this
ABOUT THE AUTHOR
Anne Fricke is a poet, author, storyteller, podcast host, wife, and mother. She lives in far Northern California, writes daily, and travels when she can. She has published two collections of poetry, a novel, a journal for parents of children with special needs, and was co-editor of a poetry collection on the theme of shelter-in-place. More about her work can be found at annefricke.com.